Well it's been a few weeks since we got the ASD diagnosis. I'm learning bit by bit and really trying to get as educated as I can be. But honestly there is so much information out there and so much to do I am at a loss on what to do first. I am getting familiar with fancy acronyms such as ASD (Autism Spectrum Disorder), three weeks ago I wouldn't have been able to tell you that...so that is something!
What have we accomplished so far? Well we went to the ASD Parents Orientation through Kaiser last Friday. They provided a lot of information on the services that are in our area as well as services that they offer but no information specific to James. We have a appointment to meet with a Pediatric Psychologist on the 29th of this month to get some more specific guidance on what James is going to need. I am looking forward to that meeting so I can have a more definite "To Do" list.
I have also been reading Ten Things Every Child with Autism Wishes You Knew and I am actually very impressed with it. I can actually read it with out trying to figure out a bunch of medical terms. A doctor I am not! I am actually of thinking of buying a few copies to give to my parents, sister and best friend. They are all around James a ton and I think with benefit greatly from the information.
One of my major tasks is to get a few books to help Megan better understand her brother and how she can help him. We got a list at our orientation that I have yet to look at. I guess that will be a task for this weekend.
Here are some of my concerns about parenting at the moment...
Food-James is beyond picky and I feel like I have tossed in the towel on getting him to eat anything other than his fab five. Yogurt, cereal, cheese, crackers and Pediasure. Megan on the other hand has been on a non-diet diet for years. No seconds on starches, extra veggies and sweets occasionally. We are constantly saying no to seconds and no to extra snacks, I hate it and really we have not seen much difference in managing her weight. She has stayed on her growth curve no matter what we have done.
Fits, Meltdowns and Tantrums-Is it possible for a little boy who fits under the ASD umbrella to have all three. They are all quite different from one another but Mike and I have been feeling more and more that we are avoiding all of them as much as possible. Obviously we want to avoid the full emotional meltdown. They are no fun for any of us and are a direct result of us missing the over stimulation cues James gives out. But sadly we have seen a increase in the tantrums and fits as we have worked on learning his meltdown cues. We need to find the middle road where we are not walking on egg shells and no giving into every request the little man has.
Sleep-Our "good sleeper" has left us and is now a pain in the rear. We have a 20-40 minute struggle every night. James is ready for bed, grabs his blanket and gives kisses. He is all smiles when you put him in bed. But as soon as the door closes the screaming starts, his blanket and pillow get tossed out of his crib. We usually wait for 10 minutes before we go in and tuck him back in. THEN he goes to sleep. How did we create THIS bedtime routine? How do we kick the habit?
So yeah, just a few of my thoughts on this mellow Friday night. Anyone have any thoughts or suggestions?
Sorry no pictures this time...a little boy I know seems to think hiding the camera cord is a good time.
Until next time...